Monday, February 15, 2010

 I'm renaming him "Murphy"

When our week with K in the hospital was coming to an end, with a predominantly unsuccessful result in what we had hoped to accomplish, we offhandedly joked that he would likely have the seizure once we got home. You know where this is going don't you? Indeed, as Murphy's law would have it, we spent 5 days in the hospital trying all kinds of things to cause him to have a seizure so that we could capture it on EEG and video monitoring - during which time he did not as much as sneeze for us, but in the two days that we have been home he has had 3 - yes THREE - seizure type episodes. At this point I am not really sure what is going on. If he didn't respond to the knowledgeable doctor's efforts in trying to induce a seizure it may be that these are not seizures after all. I do not know if they are hurting him. I do not know what in the world is bringing them on. I do not know when the next one will occur. I do not know if he just has a longer reaction time and he is now responding to everything we tried while he was in the hospital. I do not know if his currant medication is doing anything for him. I wonder if we are missing something. I am going over each episode in my mind and searching for clues. I am trying to deny the discouragement that is creeping up. I am tired and frustrated and hoping. Hoping for something... some clue...some answers..... And in the midst of it God is showing me his sovereignty. I am struggling with how little control I have over the situation, but HE is showing me that I don't need to be in control of it. Because He is and He knows... Would you join me in prayer for this precious little guy who has so stolen my heart?I love him so.

12 comments:

une autre mère said...

Oh, Wendi, I'm so sorry. I'm praying for you!

Sarah@Life in the Parsonage said...

Praying, Wendi. God has it figured out already...He'll give you that "ah ha!" moment just at the right time.

Praying peace in the the uncertainty.

Anne Elizabeth said...

I am so sorry that you didn't get answer last week. I am praying hard for you and K.

Rachel @ Future Pastor's Wife said...

Praying for you! For peace and answers for you & Dave. For relief for K.

nault's nook said...

Oh sweetie, I will definitely be praying for God's wisdom, peace and strength. Praying you can get some answers soon! Hang in there!

Rachel said...

Oh that must be so frustrating! I am so very sorry :( Praying for your little guy (who is adorable by the way!) and for you and Dave as you continue to look for answers. Praying you get some soon!!!!

Anthony's Mommy said...

I love him too! I hope you guys can find an answer soon.

Kim

Tonya said...

that is so hard not to have answers. Can I ask a question? can there be anything in his environment that could be causing this? radon, mold, chemicals etc? praying for peace and answers.

Lois Lane II said...

Oh, no. =( Praying for all of y'all...

Mama Belle said...

Praying for your little man.

Rebecca said...

praying for all of you!!

The Sneaky Mommy said...

Psalm 61 has always been a comfort to our family. We often pray verse 2 as we long for God to reveal Himself and His plan to us. Praying this for you today!


1 Hear my cry, O God, listen to my prayer;

2 from the end of the earth I call to you when my heart is faint.
Lead me to the rock that is higher than I,

3for you have been my refuge,
a strong tower against the enemy.

4Let me dwell in your tent forever!
Let me take refuge under the shelter of your wings!

5For you, O God, have heard my vows; you have given me the heritage of those who fear your name.

6Prolong the life of the king;
may his years endure to all generations!

7May he be enthroned forever before God; appoint steadfast love and faithfulness to watch over him!

8So will I ever sing praises to your name, as I perform my vows day after day.