Wednesday, January 28, 2009
Normal is over rated
Sometimes our prayers are not answered in the very specific way that we desire. And we find out that it's still okay. That things could always be worse. That God is in control.
Last night we got a call from the radiologist who had been able to take a look at K's EEG. See this post if you don't know what I am talking about. We weren't expecting to get the results yet, but we were glad the wait wasn't as long as we were told it would be.
Everything is unchanged. The same "probability" of seizure activity. The same erratic brain wave patterns and abnormal readings. He will stay on the anti seizure medication for now. A pill every morning and a pill every night.
It's not that big of a deal. I always have to remind myself in these situations that the fact that nothing has changed can be viewed as a very good thing.
Nothing has changed. My K is still a smart, fun loving, crazy little guy. He is growing and progressing well. Erratic brain activity and all. Darn it I probably have erratic brain activity too. They should do EEG's on Dave and I to see if there is a genetic component... :)
We will talk to the neurologist who ordered the EEG and oversees all of K's neurological development next month and explore this further.
For now I know that things didn't go exactly as I had hoped, but K is healthy, happy, and very stable. His EEG's have never been normal. I'm not sure why I thought this time would be different.
K is the boy who is teaching me that normal really is just a setting on the dryer. Who wants normal? (Are you picking up on the 'trying to convince myself' tone of this post?)
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25 comments:
I am convinced that no one is normal :)
I so relate to that "trying to convince yourself" which is really you speaking truth to yourself where you feel like believing lies. Happens continually to me :)
I'm thinking of you!!
You are such a brave lady and everytime I visit your site you have a profound effect on me and my faith. Love you much, dear friend!
Love keeping in contact through your post. Praying for your family often.
Love, Aunt Lois
Sorry it was not what you had hoped. But very glad that at least this time you know it was not because the testing did not go well.
About our girl date...
It probably would be best if we could go for an afternoon. I keep meaning to call, but you see where that has gotten me. :)
My word verification is forthhip. Have my hips really gotten so big that it looks like I have 4!
I totally get it. I kind of convince myself too and believe what I'm saying to myself at the same time. God is cool like that.
So I got your comment and then I tried to respond to your comment and realized it didn't have an email so I typed the whole thing out because I didn't notice it wouldn't work to do that. So now I'm going to go find your email under "contact me" and email you. :) I'm making no sense...
Normal is definately overrated!!
I'm sorry that the news wasn't what you hoped, but like you said...K is happy and doing well. (Which is exactly what every mom wants!) That K of yours is so so special. The Lord has big plans for him. :-)
NORMAL... hmmm...
I'm thinking that the normal (abnormal) parts of our families & lives are what give each of us the opportunity to shout from the roof-tops ...
WE ARE EXTRAORDINARY!!
The {ordinary} things that make us {us} ... also mean we are {extraordinary} in so many, many ways!
You & your boys are EXTRAORDINARY!!
Well since we share a brain, then I imagine I have some pretty erratic activity going on as well, girl. ;)
I so get the trying to convince myself thing. Going through that right now, too. I'm so thankful that God understands us and our feelings and emotions, aren't you?
You're right! We need to learn to celebrate our difference, and not try to conform all the time. Let's hear it for a little variation!
Not sure any of us are "normal."
The "convincing yourself" is a actually a good thing. Your taking your thoughts captive and speaking the truth to your mind. God is in control and K is smart and learning more every day. Thank God He is in control.
Wendi,
I'm so sorry that K's EEG was not "normal" but as you said, at least he's "very stable." I am praying that there are no seizures for him going forward and that he continues to grow and learn and LOVE :)
Many hugs and prayers,
Amanda
I'm sorry things weren't better, but he is such a great kid as is... :)
I think that the reason you are disappointed is that this time K was able to sleep when he was supposed to and you hoped that would make a difference. God is still in control and K has never had a seizure. I don't know if the medicine has made the difference or not, but he takes it well and it does not matter to him. It is part of his life. God has given us a very special boy and we will continue to trust Him in K's life. What a treasure! Love, Mom
Your attitude and faith are your gift to others Sister.
I am thinking of you.
you are blessed to have such an amazing son, and he is blessed because you realize that!!!!
Is it weird when "normal" starts feeling like an ab-normal concept? I don't think I'll ever know what normal is when it comes to pregnancy or having a child (BTW having another miscarriage GRR) But i think I'm really starting to realize that maybe my life is perfect the wacky way it is. =-)
Kim
NORMAL SHMORMAL...Nobody's normal. You have a wonderful character and God is using you and K. You speak to so many and help them on their journey. Stay strong.
your little guy is "ab"normal in wonderful ways and he is going to make such a mark in this world...I just know it.
Sending you both smiles and hugs. :)
it's ok, wendi (like you need ME to tell you that, right?)!!! your cup is waaaaaaaaaaay more that half-full; it looks like to me that it's over-flowing:D besides normal is very relative!
much love,
dani
Normal is just easy and anything worth having is worth working for...
You are doing awesome!!
keeping you in my prayers!
I can so understand the longing for it to be normal. You are doing a fantastic job with him and the other kids so praise God for that! I think I would be a rec all the time trying to juggle all you do. You are strong and the Lord is your strength.
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