Wednesday, January 7, 2009

 Electroencephalography

Yep, I know some big words. :) Just popping in quickly today with a little prayer request. Today at 2:00 I will be bringing K in to the hospital where he was born for a routine EEG. This is a Scalp EEG which measures the summed activity of post-synaptic currents. Yeah, whatever that means. Basically a technician will be placing about 25 electrodes on K's scalp, forehead, and chest to measure brain waves and patterns. As I said, this is routine and no cause for alarm. He had his first EEG when he was less than a week old. The NICU nurses thought they saw him have what may have been a seizure. It was never confirmed. The first EEG, and all following EEG's showed great potential for seizures and highly abnormal brain activity. We have never actually seen him have a seizure. A couple of times I questioned weather he was having a petit mal seizure, but was never sure. Petit mal seizures are pretty much a 'staring spell' that some refer to as an absence seizure. It's like for a few minutes the person having the petit mal seizure is not really present with you. Even though we have never really seen K have any confirmed seizures, the high potential for seizures and abnormal brain patterns seen on his past EEG results have prompted doctors to put K on, and keep him on, medication that he must take each day. At first we had to go have these EEG's done a couple of times a year. It was very exciting when we were able to just have them done annually. The results have yet to come back normal. Here are my requests: First of all K has to be awake for part of the test and asleep for part. Ha ha! That's kind of a big joke. He gets so nervous during these kinds of tests (and no one can blame him!) that it doesn't matter how tired he is - he will do every thing in his power to stay awake. And he is just that stubborn. I let him stay up a little bit later than normal last night and I got him up at 5 this morning. He's been going strong ever since. So, it would be awesome if he would be able to cooperate and go to sleep for part of this test! I don't think he ever has in the past, and they have still been able to get some what accurate readings. Still, I know they really prefer him to sleep for at least a small portion of it. Fortunately I will be able to lay down on the bed with him. I will bring his special quilt and soft pillow that he sleeps with each night. I'm really hoping that this time he will feel more comfortable. It does help that he is getting older and able to understand more. You know, I can just look him in the eye and say, "Honey, the nice man is just going to measure the summed activity of your post-synaptic currents. It won't hurt and it will all be okay." I'm sure that will help! Also, it would be wonderful if this would be our first EEG that would no longer show the seizure potential and we could finally get him of the medicine he has been on for 6 years! I'll let you all know how it goes!

16 comments:

Beth in NC said...

I am praying!

Kristy said...

I'm praying too!!

Smilingsal said...

No matter how it goes, it's a tough day. I'll pray.

Sara@Interpret Sass said...

I'm praying for all of you too.
I keep my promises. So if you've been to Butterville...you know what I'm talking about. If not, that's okay too. Find me here:
interpretsasscox.blogspot.com
I would have emailed you but I guess I don't have your address.
Praying for your day to go well! :)

Rach@In His Hands said...

Wendi, I'm saying big prayers for that sweet, strong K of yours!

Mari said...

I'll be praying. We went through this with our son when he was 6. He had petit mal seizures. It's so hard trying to keep a 6 year old awake for so long before that test!

Lois Lane II said...

Praying for K and your family. I'm like him; I'd be terribly nervous, too. Hope all goes well!

Kellie said...

Praying for your family today. How hard it is to endure procedures like this, as it brings back so many memories from the road you have traveled to get to this place. It also lets us rejoyce the life you have been given and all the blessings that have come with it. I will anxiously await the results with you!

Anne Elizabeth said...

I will be praying! Keep us posted.

Noah and Ryders Mommy said...

Definitely praying for you guys today, Wendi!!

AmandaHoyt said...
This comment has been removed by the author.
AmandaHoyt said...

Wendi,
I am praying for you and K. I have added your request to our prayer blog: http://beforethrone.blogspot.com/.
You are covered in prayer and we hope today goes very well.
I have a seizure disorder and know all about EEGs. I know how hard it is to sleep during a sleep EEG even when you stay up all night. I can only imagine how it is for K trying to do it.
Hugs,
Amanda

dani said...

i hope everything went well, wendi!!! i just said a prayer... better late than never:)
love,
dani

Joy Abbott said...

Hey you, wish I would have known sooner. but the Lord knows. Still praying. It has been wonderful to see how God is using Caleb to show the doctors who is really in control! Jim and I love watching and finding out the new things he is able to do!
See you soon!

Sarah@Life in the Parsonage said...

Awake AND asleep!! Oh my word.

Praying it went well!

Melissa said...

It's never to late to pray and pray hard..and that I will do.