Friday, February 12, 2010

 Naps are way overrated anyway...

I love it when all six of us are at home together. K was discharged from the hospital around 10:30 this morning. Best case scenario of the week would have been K having a seizure while hooked up to the EEG and constant video monitoring so that we could get a detailed peak into what his brain is doing while he is having a seizure and make a very informed medication plan. The reality of the week is this: K rarely does anything expected or typical. We went through 5 days and four nights of very little sleep, lots of balancing and juggling of work life, family life, and hospital life, we tried stressing him out in different ways to induce a seizure, I think we got far more stressed than he, we drove the 60 miles between home and hospital alot, we relied on other people and realized how very cared for we are, somewhere in there I turned 29, K charmed an entire pediatrics unit into loving him and making excuses to come into his room, and in the end he never did "cooperate" by having a seizure. It was not an easy week, and I struggled to think it was all in vain yesterday. However, that is not the case . Even though we will not be able to see exactly what goes on in his inner workings during a seizure, the 24 hour EEG test results will help aid his neurological medical team in figuring out a few more things. We have a follow up appointment with his neurologist in March and we will talk about their findings. Did I expect that K would really have a seizure and all of this would work the way the doctors planned it? - If I did I should laugh at myself. This is K we are talking about. My color outside of the lines, think outside of the box, rarely respond in ways any one could ever guess, miracle K. :) Such is life. Excuse me while I go take a nap. After I calm down my almost 4 month old who seems to be teething rather prematurely. Something tells me that nap may just be a fantasy for a long long time.

5 comments:

Annika said...

I can't imagine. Life can be so confusing at times. Hang in there. I have learned that when I try to figure God out I just make things worse, in my mind and in life. Know God is holding you and your family in the palm of His hand. He will provide, protect and guide you. All you must do is ask.

Jessi said...

I wish he would have had a seizure during but I'm glad the 24 hr results will be able to help the doctors have more insight.

Hang in there!

My son popped through his 2 bottom teeth the day he turned 4 months old!

une autre mère said...

Sorry that K didn't have a seizure this week. I'm sure that was a huge disappointment. Hopefully the doctors will be able to find something new and helpful in the EEG test results!

You'll be in my prayers. I hope you can get a nap in. Sounds like you could really use it! Hang in there, girl!

Jenn @ A Country Girl's Ramblings said...

"My color outside of the lines, think outside of the box, rarely respond in ways any one could ever guess, miracle K." Loved this description of K!

Amy@My Front Porch said...

So sorry to hear about the seizure -- or lack thereof!

Hope you were able to fit a nap in!