He's amazing.
Really he is.
Day one of EEG and video monitoring.
He started out with his great huge signature smile...
Saying something about not having to get up early, and not going to school, and being excited about watching DVD's...
Then he turned the drama on when they took vitals.
He's
really not a fan of having his blood pressure taken.
Fortunately these wonderful pediatric nurses have alot of experience with small, melodramatic people. So when he said "Owwwww!! Stop doing that! It huuuurrrrtttsss!!!" during the necessary bp check she just smiled and told him it would be over soon.
We had a couple of hours that were rough.
Three tries to get the IV placed. *Shudder*
A mommy who desperately wanted that part to be over, and had to take some deep breaths, sit down, and drink some water in the midst of the vein seeking to regain some composure.
About an hour of gluing electrodes to his head and making sure all the right connections were being made.
And at the end of that the smile was replaced by the evil eye...
But really... who could blame him? Not me. For sure not me. He was one brave boy.
Finally they were done and he got a special "hat".
The smile returned when much praise was verbalized, hugs were given, DVDs were picked out, and puzzles were brought to the room.
He is now resting comfortably and is just as happy as can be.
Dave took over at the hospital and I am now home with the other three guys. Apparently Kai shunned the bottle today for grandma - so he and I will be sticking pretty close together for the rest of the week.
Now we just wait.
And hope he has a seizure that can be captured by video and EEG so that we can get a treatment plan in place and our family can all be together under one non-hospital roof again.
Simple as that. :)
K is being weaned from his meds, but all of this will take time. The doctors I talked to today seemed pretty convinced that K would need to be at the hospital for most of the week.
Thank you so much for your care and prayers! We are truly so very blessed.
Then he turned the drama on when they took vitals.
He's really not a fan of having his blood pressure taken.
Fortunately these wonderful pediatric nurses have alot of experience with small, melodramatic people. So when he said "Owwwww!! Stop doing that! It huuuurrrrtttsss!!!" during the necessary bp check she just smiled and told him it would be over soon.
We had a couple of hours that were rough.
Three tries to get the IV placed. *Shudder*
A mommy who desperately wanted that part to be over, and had to take some deep breaths, sit down, and drink some water in the midst of the vein seeking to regain some composure.
About an hour of gluing electrodes to his head and making sure all the right connections were being made.
And at the end of that the smile was replaced by the evil eye...
But really... who could blame him? Not me. For sure not me. He was one brave boy.
Finally they were done and he got a special "hat".
The smile returned when much praise was verbalized, hugs were given, DVDs were picked out, and puzzles were brought to the room.
He is now resting comfortably and is just as happy as can be.
Dave took over at the hospital and I am now home with the other three guys. Apparently Kai shunned the bottle today for grandma - so he and I will be sticking pretty close together for the rest of the week.
Now we just wait.
And hope he has a seizure that can be captured by video and EEG so that we can get a treatment plan in place and our family can all be together under one non-hospital roof again.
Simple as that. :)
K is being weaned from his meds, but all of this will take time. The doctors I talked to today seemed pretty convinced that K would need to be at the hospital for most of the week.
Thank you so much for your care and prayers! We are truly so very blessed.
8 comments:
What a sweet brave little boy! Praying for God's protection as he endures this testing and answers as the doctors look at the results. Take care!
Wow, what a crazy ride you have ahead of you. Praying. Can't wait to read future posts.... Get some sleep mamma
So glad that things went well getting him settled in. Praying that the rest of the week goes as well and that you guys are filled with peace over everything that is being discovered.
Oh...I.V. placement...I shudder just thinking about it. You've got brave little guy! We're praying!
Praying this week goes well! Sorry the IV placement was so terrible. Poor thing, but how brave he is!
I remember watching them try and find IV sites on Silas....I could hardly watch.
Praying for you all this week!
What a brave little guy! I am so sorry to hear about the 3 tries for an IV...that is just awful. I hope the rest of his week goes well - praying for him and for you and Dave this week for sure.
That evil eye is SO familiar!!! I believe it looks just like the one given by my hubs and kiddos! He belongs!
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