Wednesday, January 28, 2009
Normal is over rated
Tuesday, January 27, 2009
"Too hard Mommy..."
Sunday, January 25, 2009
To every thing there is a season
Friday, January 23, 2009
But wow, I'm not going to want to do it
This year is going to be packed busy for you. The mommy part of me cringes at some of the things that I am purposefully pursuing for you. The practical side of me knows you are ready and that I must challenge you. Not to do so would be doing you a disservice.
Little one, how did you get so grown so fast?? I am so proud of you.
We will be busy attending meetings and getting recommendations for planning kindergarten. Last year we wanted you to go, but had some questions. After coming up against some oppositions from school administrators we further examined our questions and decided not to push for it. No such question this year. You will be going to kindergarten. Your readiness nearly bursts forth in your questions, your abilities, and there is just a look in your eye... Buddy, sometimes I just want so much to let you do what you want. To take the easy way. But I know that way all too well. I have that game down and it has not served me well. The left side of your body works fabulously, and so you use it always. The neglect of your right side is always easiest. But it is not best. I am often amazed at the things you accomplish one sided. You will use your teeth, arm, and feet before you use your last-resort right hand. It often seems to not even occur to you that it is there to be used and to help you. And so this summer we are finally getting you into a specialized pediatric rehabilitation program that will take away your ability to do just that; avoid the difficult.
By restraining what you can do you will be forced to a level of frustration that I wouldn't wish on some one I didn't love with every fiber of my being - certainly not some one I do. So, so much. And yet my love for you is growing to a level of seeing the amazing good it will do you to push through the difficult and raise the bar of ability for you. We tried to get you into the C.H.A.M.P (Comprehensive Hand And Arm Movement Program) a couple of years ago and through some confusion in their office things never moved forward. I believe K, that you were not ready. And now you have achieved so much more. We are now actively pursuing this and are in contact with the team who run this program. Our aim is to begin the intense therapy this summer. For three weeks your "good arm" will be in a cast. I can't even imagine what this will be like for you. Some therapists have described the difficulty of using your right hand and arm as if we were to try to use our toes for activities that require very coordinated skills only fingers and hands can do. You have to use so much concentration to do as much as lift your arms and grasp an object with your right hand.
I will drive you to the rehab center, an hour away, 3 days a week for 3 weeks where we will join a few other kids with similar physical challenges. We will spend a few hours there doing different activities and seeing several therapists. At home I will need to keep a detailed journal and do several planned activities here as well. The cast on your left arm will be removable and we will be given the option to do so, but it has been recommended to just keep it on. If we are going to do this, it will probably be best to do it all the way. The moments will come where everything in me will just want to make it all go away for you. I will want to rip the cast off and stop doing the tough stuff. I will need your daddy to help me to stay strong and do what is best for you - not easiest. Through it all I hope you will see that what we do is out of a love that is so deep, so hopeful.
We see a new readiness that is just thrilling for us. In the next few months we will be getting some new evaluations for you. The Standardized testing that we have done in the past has been a joke. There is nothing about you that is standard my dear. :) Finding a pediatric specialist who is eager to do some psychological /cognitive testing that is designed for visually impaired kids with CP was such an answer to prayer! We will also have an evaluation of your size/eating/nutrition. We will get the results to your EEG, and see your neurologist. Its going to be so busy, and it won't all be comfortable for you - or me. But isn't that part of the big things you and mommy are learning together K? Comfortable may be nice and easy. Such a happy place. :) But it doesn't help us grow much does it? I'm so glad to be learning along side you mister K.
Thursday, January 22, 2009
My sense of humor may be slightly hindered by my present circumstances
(Here's the reply the teacher received the following day)
Tuesday, January 20, 2009
And he most definitely DID share with his mama
Monday, January 19, 2009
A give away winner and a tired vlogger
And yes, for the record, I did realize that the "in everything give thanks" message of the sign I made was quite applicable for my currant situation after I posted the video. :)
Sunday, January 18, 2009
He didn't carefully knit them together to have them thrown away
K's foot prints at birth
I know that ultra sounds can be very difficult to decipher. This one in particular is not very clear, so I don't expect you to be able to really get it the way I do. Nevertheless, it is very special to me. This is K and J.D. ten days before they were born. It K's head resting on J.D.s leg.
Friday, January 16, 2009
Building Hope
Tuesday, January 13, 2009
Payin' it forward

All you need to do is leave a comment on this post and you will be entered to win the sign. Be sure to have your email address included in your comment so I can contact you if you are the wonner. I sense that some of you are nervous now. You think that if you enter you will have to come up with some crafty project and have your own give away. Well, I am going to make this easy for you. Because I like you, and I don't want any one to have bloggy give away anxiety.
If you enter and happen to win I would love it if you just kept the pay it forward idea some where in your mind. You don't have to do anything crafty, do a bloggy give away, or post about it, jut look for opportunities to give some thing away some time in the next few months. You do not even have to have a blog to enter. Now if you win, you really enjoy crafting, and have just been waiting for an opportunity to make some thing to give away then please do! :) If that is the case you will just come up with your idea and compose a blog post similar to this one, keeping the pay it forward give away on a roll.
This give away will be open until Monday, January 19th, at which time a random winner will be drawn. Go on now, enter to win and then go tell your friends all about it! :) On a different note, I want to sincerely thank every one for their incredibly kind comments during the anniversaries of J.D. s birth and death. It means so much to me!
Sunday, January 11, 2009
He made me better
Thursday, January 8, 2009
Amazing!

Wednesday, January 7, 2009
Electroencephalography
Monday, January 5, 2009
Good times
So much fun! My four siblings and I spent the next hour or so playing and laughing together and it seemed we were all transported temporarily back to our childhood. :)
Someday perhaps I will tell you about the precious time spent with my out of state cousins whom I haven't seen in a long time, how I realized as never before how important family really is to me, about our Christmas Eve camp out in our living room, the ice we traveled on for four hours and God's protection, the trip to see my family that can be made in about 8 1/2 hours that we made in 11 1/2, the fun with sisters, the oh-so-classy dress nabbed at target for $12 (important stuff!!), My sweet mom and dad who delighted in surprising us with a very unexpected money gift, the hotel stay, which happened partly because of that gift, which made our return trip so much more enjoyable, the swimming fun, the birthdays celebrated, the hopes for our new year...
Whew! There is just SO much. I guess I did just tell you all about it though didn't I? :)















